Genetic disease screening.
Vote required
Majority
Fiscal committee
No
Appropriation
No
Current location
Appropriations
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Assembly
- Passed Senate
- To Governor
- Became Law
Overview
This bill requires California to expand newborn screening to include testing for Duchenne muscular dystrophy, and to continue expanding screening to include other genetic diseases as recommended by federal guidelines. It aims to improve early detection and treatment of these conditions by increasing funding for the Genetic Disease Testing Fund and expanding the Genetic Disease Branch Screening Information System. The bill also mandates a timeline for implementing these expansions, with Duchenne muscular dystrophy screening required by January 1, 2027.
Key provisions
- Expand newborn screening to include Duchenne muscular dystrophy.
- Continue expanding screening to include other genetic diseases as recommended by the federal Recommended Uniform Screening Panel (RUSP).
- Increase funding for the Genetic Disease Testing Fund.
- Expand the Genetic Disease Branch Screening Information System.
- Establish a timeline for implementing the expanded screening program, with Duchenne muscular dystrophy screening by January 1, 2027.
- Require fees for newborn screening services to support the program.
- Authorize the department to adopt emergency regulations for implementation.
- Expedite regulatory and administrative procedures for cost-effective electronic data processing.
Who is affected
- Newborns and their families
- Healthcare providers
- California residents
- Public Health Department
Bill text
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Sponsors
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1 on record
Primary sponsor
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