Rare Disease Day.
Fiscal committee
No
Current location
Chaptered
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Assembly
- Passed Senate
- To Governor
- Became Law
Overview
This resolution designates February 28, 2025, as Rare Disease Day in California. It recognizes the importance of raising awareness about rare diseases, encouraging accurate diagnoses, and supporting efforts to develop treatments and cures. The resolution also acknowledges the progress made in rare disease research and treatment, including the work of California’s life sciences sector and the FDA’s initiatives.
Key provisions
- Designates February 28, 2025, as Rare Disease Day.
- Recognizes the importance of improving awareness of rare diseases.
- Encourages accurate and early diagnosis of rare diseases.
- Supports national and global efforts to develop treatments, diagnostics, and cures for rare diseases.
- Acknowledges the 42nd anniversary of the Orphan Drug Act.
- Recognizes California’s role in developing rare disease treatments.
- References the FDA’s Accelerating Rare disease Cures Program.
- References the creation of the Jacqueline Marie Zbur Rare Disease Advisory Council.
Who is affected
- Individuals with rare diseases and disorders
- Families of individuals with rare diseases and disorders
- Healthcare providers
- Researchers
- California residents
Notable changes
- Designates a specific date for Rare Disease Day.
Bill text
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