Rare Disease Day.
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No
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Assembly
- Passed Senate
- To Governor
- Became Law
Overview
This resolution designates February 28, 2026, as Rare Disease Day in California. It recognizes the importance of raising awareness about rare diseases and disorders, encouraging accurate diagnoses, and supporting efforts to develop treatments and cures. The resolution highlights the significant impact of rare diseases on individuals and families in the United States and globally, referencing ongoing efforts by the FDA and NIH to advance research and treatment options.
Key provisions
- Designates February 28, 2026, as Rare Disease Day.
- Recognizes the importance of improving awareness of rare diseases.
- Encourages accurate and early diagnosis of rare diseases.
- Supports national and global efforts to develop treatments, diagnostics, and cures for rare diseases.
- Acknowledges the 43rd anniversary of the Orphan Drug Act.
- References the FDA's Accelerating Rare disease Cures Program.
- Recognizes California's role in developing rare disease treatments.
- References the establishment of the Jacqueline Marie Zbur Rare Disease Advisory Council.
Who is affected
- Individuals with rare diseases and disorders
- Families of individuals with rare diseases and disorders
- Healthcare providers
- Researchers
- California residents
Notable changes
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