HB 4169
Health: diseases; rare disease advisory council; create. Amends 1978 PA 368 (MCL 333.1101 - 333.25211) by adding secs. 5135 & 5135a.
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- Passed House
- Passed Senate
- To Governor
- Became Law
Bill overview
This bill creates a Rare Disease Advisory Council within the Michigan Department of Health and Human Services. The council will advise the department and other state agencies on research, diagnosis, and treatment efforts related to rare diseases in Michigan. It will be composed of a diverse group of experts including physicians, nurses, researchers, patient advocates, and industry representatives, and will focus on identifying priorities, best practices, and data collection methods related to rare diseases.
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