A Resolution recognizing May 17, 2025, as "World Neurofibromatosis Awareness Day" in Pennsylvania.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Overview
This resolution aims to recognize May 17, 2025, as "World Neurofibromatosis Awareness Day" in Pennsylvania. It highlights the importance of raising public awareness about neurofibromatosis, a rare genetic condition that affects various parts of the body and can lead to significant health challenges. The resolution acknowledges the work of organizations like the Children's Tumor Foundation in supporting research and patient care related to this disorder.
Key provisions
- Designates May 17, 2025, as "World Neurofibromatosis Awareness Day" in Pennsylvania.
- Recognizes the significance of raising public awareness about neurofibromatosis.
- Acknowledges the various types of neurofibromatosis (type 1, type 2, and schwannomatosis).
- Details some of the symptoms associated with neurofibromatosis, including skin spots, tumors, and potential complications.
- Highlights the genetic basis of the disorder and the methods used for diagnosis.
- Mentions current treatment options and ongoing research efforts.
- Recognizes the role of the Children's Tumor Foundation in supporting research and patient care.
Who is affected
- Individuals with neurofibromatosis and their families
- Healthcare professionals involved in diagnosing and treating the condition
- Researchers working on treatments and a cure for neurofibromatosis
- The general public, to increase awareness of the disorder
Bill text
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Document of record
- Version
- Pn 1067 Html
- Published
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Sponsors
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9 on record
Primary sponsor
Steven Malagari
Cosponsors
Benjamin Sanchez
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