A Resolution designating June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Overview
This resolution designates June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania. It recognizes Dravet syndrome as a rare genetic form of epilepsy characterized by temperature-sensitive seizures and often associated with developmental delays and disabilities. The resolution highlights the challenges faced by individuals with Dravet syndrome and acknowledges the work of the Epilepsy Neurogenetics Initiative at Children’s Hospital of Philadelphia. It also references the Dravet Syndrome Foundation and a remembrance day for those lost to the condition.
Key provisions
- Designates June 23, 2025, as Dravet Syndrome Awareness Day in Pennsylvania.
- Recognizes Dravet syndrome as a genetic form of epilepsy.
- Acknowledges the challenges associated with diagnosis and treatment.
- Highlights the importance of comprehensive care centers like the one at Children’s Hospital of Philadelphia.
- References the Dravet Syndrome Foundation and a remembrance day.
Who is affected
- Individuals with Dravet syndrome and their families
- Healthcare providers specializing in epilepsy and neurology
- Researchers studying Dravet syndrome
- The Dravet Syndrome Foundation
- Pennsylvania residents
Notable changes
- Designates a specific day for awareness and recognition of the condition.
- Acknowledges the existence of a Dravet Comprehensive Care Center in Pennsylvania.
Bill text
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Document of record
- Version
- Pn 2008 Html
- Published
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Sponsors
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9 on record
Primary sponsor
Cosponsors
Benjamin Sanchez
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