A Resolution ensuring greater access to sickle cell disease treatments and designating the Department of Health to conduct a comprehensive and coordinated data collection effort to better understand and quantify the scope and impact of sickle cell disease on patients, communities and states throughout the United States.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Overview
This resolution aims to improve access to treatments for sickle cell disease and seeks to better understand the disease's impact across the United States. It directs the Pennsylvania Department of Health to conduct a comprehensive data collection effort to quantify the scope and effects of sickle cell disease on patients, communities, and states. The resolution also encourages federal policymakers to ensure access to medications and treatments for individuals with the disease, particularly those enrolled in Medicare and Medicaid, and promotes research and awareness initiatives.
Key provisions
- Directs the Department of Health to conduct a comprehensive data collection effort on sickle cell disease.
- Encourages federal policymakers to ensure access to treatments for sickle cell disease.
- Urges the inclusion of sickle cell disease in newborn screening programs.
- Promotes affordable interventions, including community education and training for healthcare professionals.
- Calls for the development of innovative therapies for sickle cell disease.
- Advocates for universal access to innovative products, especially for Medicaid beneficiaries.
- Suggests involving other stakeholders, such as national and international health agencies.
- Supports efforts to address stigma, bias, and lack of public awareness surrounding the disease.
Who is affected
- People with sickle cell disease
- African Americans
Bill text
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Document of record
- Version
- Pn 2261 Html
- Published
- Not published in the source record
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Sponsors
Official sponsors from legislative records.
9 on record
Primary sponsor
Cosponsors
Benjamin Sanchez
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