A Resolution recognizing the week of September 21 through 28, 2025, as "Frontotemporal Degeneration Awareness Week" in Pennsylvania.
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Progress
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- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Overview
This resolution seeks to recognize September 21-28, 2025, as ‘Frontotemporal Degeneration Awareness Week’ in Pennsylvania. The resolution highlights the serious nature of Frontotemporal Degeneration (FTD), a neurodegenerative disease affecting speech, behavior, and personality, and impacting a significant number of people in Pennsylvania and the United States. It emphasizes the need for increased awareness and research efforts to combat this often misdiagnosed and challenging condition.
Key provisions
- Designates September 21-28, 2025, as ‘Frontotemporal Degeneration Awareness Week’ in Pennsylvania.
- Recognizes Frontotemporal Degeneration (FTD) as a priority in addressing dementia.
- Acknowledges the Pennsylvania State Plan for Alzheimer’s Disease and Related Disorders.
- Highlights the long diagnostic delay (average 3.6 years) and relatively short life expectancy (7-13 years) associated with FTD.
- States that FTD affects a significant portion of dementia cases, particularly in younger adults.
- Notes the potential for misdiagnosis of FTD as psychiatric or other neurological conditions.
- Estimates that over 60,000 people in the United States are currently affected by FTD.
- Recognizes the Association for Frontotemporal Degeneration as the leading national organization dedicated to FTD research and support.
Who is affected
- Individuals with Frontotemporal Degeneration and their families
Bill text
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Document of record
- Version
- Pn 2311 Html
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