A Resolution recognizing February 28, 2026, as "Rare Disease Day" in Pennsylvania.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Overview
This resolution recognizes February 28, 2026, as "Rare Disease Day" in Pennsylvania. It highlights the significant number of Pennsylvanians affected by rare diseases and acknowledges the challenges individuals and families face in obtaining diagnosis, treatment, and support. The resolution also recognizes the work of organizations like the National Organization for Rare Disorders and the Pennsylvania Rare Disease Advisory Council in raising awareness and advocating for those impacted by these conditions.
Key provisions
- Recognizes February 28, 2026, as Rare Disease Day in Pennsylvania.
- Acknowledges the prevalence of rare diseases in Pennsylvania (approximately 1.2 million Pennsylvanians affected).
- Highlights the challenges faced by individuals with rare diseases, including diagnosis and treatment.
- Recognizes the role of the Pennsylvania Rare Disease Advisory Council.
- Acknowledges the contributions of the National Organization for Rare Disorders.
- References the Orphan Drug Act and related efforts to promote rare disease research and treatment.
Who is affected
- Individuals with rare diseases in Pennsylvania
- Families of individuals with rare diseases
- Patients with specific rare diseases (e.g., epidermolysis bullosa, sickle cell anemia)
Notable changes
- None explicitly stated in the text.
Bill text
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Document of record
- Version
- Pn 1486 Html
- Published
- Not published in the source record
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Sponsors
Official sponsors from legislative records.
9 on record
Primary sponsor
Cosponsors
Daniel Laughlin
Lynda Schlegel Culver
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