A Resolution designating the week of October 25 through 31, 2025, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Overview
This resolution designates the week of October 25-31, 2025, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania. It recognizes Epidermolysis Bullosa (EB) as a rare genetic disorder causing fragile skin and recurrent blistering, often leading to significant pain, disfigurement, and reduced lifespan. The resolution aims to increase public awareness of this condition and support patients and their families.
Key provisions
- Designates the week of October 25-31, 2025, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania.
- Recognizes Epidermolysis Bullosa (EB) as a rare genetic disorder.
- Acknowledges the various types of EB and their varying severity.
- Highlights the challenges faced by EB patients, including pain, scarring, and potential early death.
- Calls for increased public awareness of EB.
- Encourages support for patients and their families at the national, state, and local levels.
Who is affected
- Individuals with Epidermolysis Bullosa (EB)
- Families of individuals with EB
- Healthcare professionals
- Pennsylvania residents
Notable changes
- Establishes a designated awareness week to raise public understanding of EB.
- No changes to existing laws are described in the text.
Bill text
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Document of record
- Version
- Pn 1272 Html
- Published
- Not published in the source record
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Sponsors
Official sponsors from legislative records.
9 on record
Primary sponsor
Cosponsors
Lynda Schlegel Culver
Patrick Stefano
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