H4554
An Act to improve sickle cell care
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Bill overview
This bill aims to enhance the delivery and accessibility of care for individuals affected by sickle cell disease in Massachusetts. It seeks to expand access to comprehensive sickle cell services, including specialized treatment and support programs. The legislation intends to improve outcomes and quality of life for patients and their families. It also seeks to strengthen data collection and analysis related to sickle cell disease within the state.
Key provisions
- Expand access to sickle cell disease specialists.
- Support the development of sickle cell disease treatment centers.
- Increase funding for sickle cell disease research and education.
- Improve data collection and reporting on sickle cell disease prevalence and outcomes.
- Establish a statewide sickle cell disease registry.
- Promote culturally competent sickle cell care.
- Support programs for sickle cell disease patients and their families.
Who is affected
- Individuals with sickle cell disease
- Families of individuals with sickle cell disease
- Healthcare providers
- Massachusetts residents
- Sickle cell disease advocacy groups
Sponsors
Official sponsors from legislative records.
Primary sponsor
Joint Committee on Financial Services
Cosponsors
Bud L. Williams
David M. Rogers
Arguments in favor
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Bill H.4554 194th (Current)
An Act to improve sickle cell care
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Bill Information
Bill Information
Sponsor: Joint Committee on Financial Services Status: Referred to House Committee on Ways and Means
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Bill History Cosponsors Committee Vote Fiscal Note Committee Summary
Bill History
Displaying 7 actions for Bill H.4554
| Date | Branch | Action |
| 9/29/2025 | House | Reported from the committee on Financial Services |
| 9/29/2025 | House | New draft of H1346 |
| 9/29/2025 | House | Reported favorably by committee and referred to the committee on Health Care Financing |
| 12/8/2025 | House | Reporting date extended to Wednesday, March 18, 2026 |
| 3/19/2026 | House | Reporting date extended to Monday, June 15, 2026 |
| 4/21/2026 | House | Accompanied by H4555 |
| 4/21/2026 | House | Bill reported favorably by committee and referred to the committee on House Ways and Means |
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