DeOndra Dixon INCLUDE Project Act of 2025
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed House
- Passed Senate
- To President
- Became Law
Overview
This bill authorizes the National Institutes of Health (NIH) to establish and fund the INCLUDE Project, a research program focused on Down syndrome. The project aims to investigate the causes and co-occurring conditions associated with Down syndrome across a person’s lifespan, including biological mechanisms, diagnosis, and treatment. It also prioritizes research to improve the quality of life for individuals with Down syndrome and their families, and requires biennial reports to Congress on the research conducted.
Key provisions
- Establishes the INCLUDE Project within the NIH.
- Funds research on the effects of Down syndrome on human development and health.
- Supports research involving participants with Down syndrome across their lifespan.
- Prioritizes clinical trials inclusive of or for individuals with Down syndrome.
- Investigates biological mechanisms related to Down syndrome.
- Focuses on improving diagnosis and treatment of co-occurring conditions.
- Research on Alzheimer’s disease and autoimmunity in individuals with Down syndrome.
- Requires biennial reports to Congress on research activities.
Who is affected
- Individuals with Down syndrome
- Families of individuals with Down syndrome
- Researchers
- National Institutes of Health
- Patients
Notable changes
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