HR 5469
SHINE for Autumn Act of 2025
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Bill overview
This bill, the SHINE for Autumn Act, aims to improve research and data collection related to stillbirths. It authorizes grants to states for surveillance, data collection, and building public health capacity to assess stillbirth risk factors. The bill also directs the Secretary of Health and Human Services to develop guidelines for data collection and create public educational materials on stillbirths and their risk factors.
Key provisions
- Grants to states for stillbirth surveillance and data collection.
- Requirements for de-identification of stillbirth data to protect patient privacy.
- Guidance from the Secretary of Health and Human Services on data collection standards.
- Development and public availability of educational materials on stillbirths.
- Establishment of a report by the Secretary of Health and Human Services with educational guidelines.
- Authorization of appropriations for grants and educational initiatives through 2030.
Who is affected
- Pregnant women and their families
- State and local health departments
- Healthcare providers (obstetricians, gynecologists, pediatricians, etc.)
- Public health officials
- Researchers
Notable changes
- Establishes a dedicated federal funding stream for stillbirth research and data collection.
- Mandates data de-identification to protect patient privacy.
- Requires the development of standardized data collection processes.
Sponsors
Official sponsors from legislative records.
Primary sponsor
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119th CONGRESS — 1st Session
H. R. 5469
IN THE HOUSE OF REPRESENTATIVES
A BILL
To improve research and data collection on stillbirths, and for other purposes.
This Act may be cited as the Stillbirth Health Improvement and Education for Autumn Act of 2025 SHINE for Autumn Act of 2025
or the
.
Title III of the Public Health Service Act is amended by inserting after section 317L–1 of such Act (42 U.S.C. 247b–13a) the following:
The Secretary may award grants to States for purposes of—
building State and local public health capacity to assess stillbirth data; and
collecting and reporting data on stillbirth risk factors, including any quantifiable outcomes with respect to such risk factors.
To carry out this subsection, there is authorized to be appropriated $5,000,000 for each of fiscal years 2026 through 2030.
The Secretary shall—
issue guidelines to State departments of health and State and local vital statistics units on—
collecting data on stillbirth from health care providers, and with the consent of the woman who experienced the stillbirth, including any such data with respect to the clinical history, postmortem examination, and placental pathology; and
improving processes and training related to stillbirth data collection and reporting to ensure standardization and completeness of data; and
develop, and make publicly available, educational awareness materials on stillbirths.
In carrying out paragraph (1), the Secretary may consult with—
national health care professional associations;
national associations representing State and local public health officials;
organizations that assist families with burial support and bereavement services;
nurses and nurse practitioners;
obstetricians and gynecologists;
pediatricians;
maternal-fetal medicine specialists;
nurse midwives and midwives;
mental health professionals;
statisticians;
individuals who have experienced a stillbirth; and
advocacy organizations representing such individuals.
To carry out this subsection, there is authorized to be appropriated $1,000,000 for each of fiscal years 2026 through 2030.
In this section, the term vital statistics unit means the entity that is responsible for maintaining vital records for a State, or a political subdivision of such State, including official records of live births, deaths, fetal deaths, marriages, divorces, and annulments.
Not later than five years after the date of enactment of this Act, the Secretary of Health and Human Services shall publish on a public website of the Department of Health and Human Services a report with educational guidelines on stillbirth and stillbirth risk factors.
Such report shall include, to the extent practicable and appropriate, the guidelines issued and educational awareness materials developed under section 317L–2 of the Public Health Service Act, as added by section 2 of this Act.