Sickle Cell Disease Comprehensive Care Act
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To President
- Became Law
Overview
This bill amends the Social Security Act to allow state Medicaid programs to establish health homes specifically designed to provide coordinated care for individuals with sickle cell disease. Starting January 1, 2026, states can create ‘sickle cell disease-focused’ health homes, ensuring they include dental and vision services. The Centers for Medicare & Medicaid Services will develop best practices for these health homes, and states must report on the quality of care, access, and expenditures for those served.
Key provisions
- Allows state Medicaid programs to establish health homes for individuals with sickle cell disease.
- Establishes ‘sickle cell disease-focused’ health homes starting January 1, 2026.
- Requires health homes to provide dental and vision services to sickle cell disease patients.
- The Centers for Medicare & Medicaid Services will create best practices for these health homes.
- States must report on the quality of care, access, and expenditures related to sickle cell disease health home services.
- Defines ‘eligible individual with sickle cell disease’ based on Medicaid eligibility and a confirmed diagnosis.
- Defines ‘sickle cell disease’ as an inherited blood disorder identified through genetic testing.
- Specifies reporting requirements for states implementing sickle cell disease-focused health homes.
Who is affected
- Individuals with sickle cell disease
Bill text
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Sponsors
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4 on record
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