Health Information Privacy Reform Act
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To President
- Became Law
Overview
The Health Information Privacy Reform Act aims to strengthen protections for health information by establishing new regulations for processing applicable health information. It requires the Department of Health and Human Services to create standards for privacy, security, and breach notifications, aligning with existing HIPAA rules while adding specific requirements regarding permitted uses, individual rights, and service provider responsibilities. The bill also addresses patient access to their health information, compensation for data sharing for research, and establishes standards for de-identified health information.
Key provisions
- Establishes new regulations for privacy, security, and breach notifications for health information processing.
- Defines permitted uses and disclosures of health information without authorization, including public policy purposes.
- Grants individuals rights regarding access, amendment, and deletion of their health information.
- Extends the HITECH Act’s amendment to apply to regulated entities and service providers.
- Requires covered entities and business associates to provide patients with notification regarding the removal of their health information.
- Mandates the National Academies of Sciences, Engineering, and Medicine to conduct a study on compensating patients for sharing identifiable data for research.
- Establishes unified national standards for rendering health information as de-identified.
- Clarifies preemption of existing regulations regarding health information privacy.
Bill text
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Sponsors
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2 on record
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