S 3551
PROTECT for Rare Act
Jurisdiction
US Congress
Session
119th Congress (2025-2026)
Last updated at
Jun 14, 2026, 8:44 AM
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Sign in to take action- Introduced
- Passed Senate
- Passed House
- To President
- Became Law
Bill overview
The PROTECT for Rare Act aims to improve access to treatments for rare diseases by amending laws governing Medicare, Medicaid, and private health insurance. Specifically, it expands coverage for certain drugs used to treat or manage conditions affecting fewer than 200,000 people in the United States, requiring that their use be supported by medical literature and not listed as contraindicated in compendia. The bill also establishes expedited appeals processes for coverage denials related to these drugs under various healthcare laws.
Sponsors
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Primary sponsor
Thomas Tillis
Cosponsor
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