HRES 385
Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".
Jurisdiction
US Congress
Session
119th Congress (2025-2026)
Last updated at
Jun 14, 2026, 12:15 PM
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Sign in to take action- Introduced
- Passed House
- Passed Senate
- To President
- Became Law
Bill overview
This resolution urges Congress to support the designation of May 2nd as ‘NKH Awareness Day’. It highlights the rarity of nonketotic hyperglycinemia (NKH), a genetic metabolic disorder affecting approximately 1 in 76,000 people worldwide, and the significant impact it has on those diagnosed. The resolution aims to increase public and medical community awareness of NKH to potentially encourage research, patient registry participation, and earlier diagnoses. It specifically notes the presence of four NKH patients in Virginia.
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