South Carolina · 126th Session (2025-2026)
H 5509Introduced
Sam Stockton and Batten Disease Awareness Day
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Overview
This resolution recognizes Sam Stockton and his battle with Batten disease, a rare and devastating neurological disorder. It also declares June 9, 2026, as "Batten Disease Awareness Day" in South Carolina to raise awareness about this condition and encourage research and funding efforts.
Key provisions
- Recognizes Sam Stockton and his family for their efforts in combating Batten disease.
- Declares June 9, 2026, as Batten Disease Awareness Day in South Carolina.
- Aims to increase public awareness of Batten disease.
- Encourages research and funding for Batten disease treatments and a potential cure.
- References the Batten Disease Support, Research, and Advocacy (BDSRA) Foundation's annual awareness day.
Who is affected
- Individuals diagnosed with Batten disease and their families.
- Healthcare professionals involved in the treatment of neurological disorders.
- Researchers focused on neurological diseases and genetic disorders.
- The general public of South Carolina.
Notable changes
- Establishes a specific day (June 9, 2026) for raising awareness about Batten disease.
- Highlights the need for increased research and funding for this rare disease.
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