GM1 Gangliosidosis Awareness Day.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed Assembly
- To Governor
- Became Law
Overview
This resolution designates May 23, 2026, as GM1 Gangliosidosis Awareness Day in California. It aims to increase public awareness of this rare, inherited neurodegenerative disease, which is often underdiagnosed. The resolution seeks to improve early diagnosis and access to necessary support services for individuals and families affected by GM1 Gangliosidosis. It recognizes the challenges associated with this disorder and the importance of raising visibility.
Key provisions
- Declares May 23, 2026, as GM1 Gangliosidosis Awareness Day.
- Aims to increase public awareness of GM1 Gangliosidosis.
- Recognizes the challenges of underdiagnosis and misdiagnosis.
- Highlights the importance of early diagnosis.
- Supports improved access to specialized services and support.
Who is affected
- Individuals with GM1 Gangliosidosis
- Families of individuals with GM1 Gangliosidosis
- Healthcare professionals
- Rare disease advocates
Bill text
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Sponsors
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9 on record
Primary sponsor
Cosponsors
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