A resolution to recognize June 10, 2025, as Focal Segmental Glomerulosclerosis (FSGS) Day.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Overview
This resolution aims to recognize June 10, 2025, as Focal Segmental Glomerulosclerosis (FSGS) Day. The resolution highlights the challenges associated with FSGS, a rare kidney disease that can lead to kidney failure and significant healthcare costs. It also acknowledges the disproportionate impact of the disease on African American communities and the ongoing efforts to improve diagnosis, treatment, and awareness.
Key provisions
- Designates June 10, 2025, as FSGS Day.
- Aims to raise awareness about FSGS and its impact.
- Recognizes the challenges patients and families face with the disease.
- Acknowledges the disproportionate burden of FSGS on African American communities.
- Highlights the need for improved diagnosis and access to treatment.
- Mentions ongoing clinical trials and potential FDA-approved therapies.
- Recognizes the role of patient groups and researchers in raising awareness.
Who is affected
- Patients with FSGS
- Families of patients with FSGS
- African American communities
- Healthcare providers
- Researchers
Notable changes
- Designates a specific day for raising awareness about FSGS.
- Calls for improved access to nephrology care specializing in rare kidney diseases.
Bill text
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Document of record
- Version
- Senate Enrolled Resolution
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