A resolution to recognize October 23, 2025, as PURA Syndrome Awareness Day.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Overview
This resolution designates October 23, 2025, as PURA Syndrome Awareness Day in Michigan. PURA syndrome is a rare genetic disorder that can cause significant developmental challenges. The resolution aims to raise awareness of the condition, support affected families, and encourage research into better treatments and diagnoses. It also seeks to foster a more inclusive community for individuals with this rare disease.
Key provisions
- Designates October 23, 2025, as PURA Syndrome Awareness Day.
- Recognizes the challenges faced by individuals with PURA syndrome.
- Encourages public education about PURA syndrome.
- Promotes support for families affected by PURA syndrome.
- Supports research into PURA syndrome.
Who is affected
- Individuals with PURA syndrome and their families
- Rare disease advocacy groups
- Healthcare professionals
- The general public
Notable changes
- Establishes a designated awareness day for PURA syndrome.
Bill text
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Document of record
- Version
- Senate Enrolled Resolution
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