H 2495
An Act relative to LSDs (Lysosomal Storage Disorders) in infants
Take action
Record your position on this measure.
Sign in to record your position, submit testimony, or contact your legislator.
Sign in to take action- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Bill overview
This bill addresses Lysosomal Storage Disorders (LSDs) in infants by establishing a process for improving newborn screening. It aims to ensure that infants with LSDs are identified early, allowing for timely intervention and treatment. The bill seeks to enhance the accuracy and effectiveness of newborn screening tests for these conditions, ultimately improving outcomes for affected infants and their families.
Key provisions
- Requires the Department of Public Health to study and recommend improvements to newborn screening for LSDs.
- Directs the Department of Public Health to review existing newborn screening protocols.
- Supports the development of more accurate and sensitive screening methods.
- Facilitates the early identification of infants with LSDs.
- Promotes timely access to diagnosis and treatment.
- Encourages collaboration between healthcare providers and specialists.
- Addresses the need for increased awareness of LSDs among healthcare professionals.
- Supports research into improved treatments for LSDs.
Who is affected
- Infants
- Families of infants with Lysosomal Storage Disorders
- Healthcare providers
- Public Health officials
- Individuals with Lysosomal Storage Disorders
Notable changes
- Focuses on enhancing newborn screening procedures.
- Supports research and development of better diagnostic tools.
Sponsors
Official sponsors from legislative records.
Primary sponsor
Joseph D. McKenna
Cosponsors
Alyson M. Sullivan-Almeida
Brian M. Ashe
Bruce E. Tarr
Estela A. Reyes
Arguments in favor
Reasons to support this legislation.
No arguments in favor have been submitted.
Submit yoursArguments opposed
Reasons to oppose this legislation.
No arguments opposed have been submitted.
Submit yoursRead the latest version inline or switch to a previous version.
Bill H.2495 194th (Current)
An Act relative to LSDs (Lysosomal Storage Disorders) in infants
By Representative McKenna of Sutton, a petition (accompanied by bill, House, No. 2495) of Joseph D. McKenna and Alyson M. Sullivan-Almeida for legislation relative to LSDs (Lysosomal Storage Disorders) in infants. Public Health.
View Text Print Preview Download PDF
Bill Information
Bill Information
Presenter: Joseph D. McKenna
Tabs
Bill History Petitioners Committee Vote Committee Summary
Bill History
Displaying 6 actions for Bill H.2495
| Date | Branch | Action |
| 2/27/2025 | House | Referred to the committee on Public Health |
| 2/27/2025 | Senate | Senate concurred |
| 7/3/2025 | Joint | Hearing scheduled for 07/14/2025 from 01:00 PM-05:00 PM in A-1 |
| 7/14/2025 | Joint | Hearing rescheduled to 07/14/2025 from 01:00 PM-06:45 PM in A-1 and Virtual Hearing updated to New End Time |
| 7/14/2025 | Joint | Hearing rescheduled to 07/14/2025 from 01:00 PM-06:05 PM in A-1 and Virtual Hearing updated to New End Time |
| 3/16/2026 | House | Accompanied a study order, see H5235 |
Similar Bills
H.2236 193rd (2023 - 2024)
An Act relative to LSDs (Lysosomal Storage Disorders) in infants
S.1258 191st (2019 - 2020)
An Act relative to LSDs (Lysosomal Storage Disorders) in infants
S.1432 192nd (2021 - 2022)
An Act relative to LSDs (Lysosomal Storage Disorders) in infants
S.1530 194th (Current)
An Act improving newborn screening tests
S.1145 189th (2015 - 2016)
An Act relating to LSDs (Lysosomal Storage Disorders) in infants
The information contained in this website is for general information purposes only. The General Court provides this information as a public service and while we endeavor to keep the data accurate and current to the best of our ability, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk.