An Act relative to ensuring treatment for genetic craniofacial conditions
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Overview
This bill aims to ensure that individuals with genetic craniofacial conditions receive appropriate and timely treatment. It seeks to improve access to specialized care and support for those affected by these conditions, which can cause significant physical and developmental challenges. The legislation intends to establish a framework for better coordination of care and potentially expand coverage for related services. It is modeled after similar legislation previously proposed in the Massachusetts legislature.
Key provisions
- Requires the Department of Public Health to develop guidelines for the treatment of genetic craniofacial conditions.
- Encourages collaboration between healthcare providers to improve care coordination.
- Promotes research into genetic craniofacial conditions and their treatments.
- Supports the development of a registry for individuals with these conditions (details to be determined).
- Expands access to specialized medical services for affected individuals.
- Addresses the need for comprehensive support services beyond medical treatment.
Who is affected
- Individuals with genetic craniofacial conditions and their families
- Healthcare providers specializing in craniofacial care
- The Department of Public Health
- Researchers studying craniofacial conditions
Notable changes
Bill text
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Sponsors
Official sponsors from legislative records.
9 on record
Primary sponsor
Cosponsors
Jacob R. Oliveira
James B. Eldridge
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