H 1189
An Act providing insurance coverage for Alfi’s syndrome
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- Passed House
- Passed Senate
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- Became Law
Bill overview
This bill aims to establish insurance coverage for individuals diagnosed with Alfi’s syndrome. Currently, coverage for this condition is not mandated, leaving many patients with significant out-of-pocket expenses for treatment. The legislation seeks to address this gap by requiring insurance plans to cover the costs associated with diagnosing and treating Alfi’s syndrome. This would improve access to necessary medical care for those affected by the condition.
Key provisions
- Requires insurance plans to cover the costs of diagnosing Alfi’s syndrome.
- Requires insurance plans to cover the costs of treating Alfi’s syndrome.
- Does not define the scope of Alfi’s syndrome for coverage purposes.
- Addresses a lack of existing insurance coverage for the condition.
Who is affected
- Individuals diagnosed with Alfi’s syndrome
- Patients seeking treatment for Alfi’s syndrome
- Families of individuals with Alfi’s syndrome
Notable changes
- Creates a new requirement for insurance coverage.
- Addresses a previously unmet need for financial assistance related to Alfi’s syndrome.
Sponsors
Official sponsors from legislative records.
Primary sponsor
Natalie M. Higgins
Cosponsor
Natalie M. Higgins
Arguments in favor
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Bill H.1189 194th (Current)
An Act providing insurance coverage for Alfi’s syndrome
By Representative Higgins of Leominster, a petition (accompanied by bill, House, No. 1189) of Natalie M. Higgins relative to insurance coverage for Alfi’s syndrome. Financial Services.
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Bill Information
Bill Information
Presenter: Natalie M. Higgins
Tabs
Bill History Petitioners Committee Summary Hearing Attendance
Bill History
Displaying 4 actions for Bill H.1189
| Date | Branch | Action |
| 2/27/2025 | House | Referred to the committee on Financial Services |
| 2/27/2025 | Senate | Senate concurred |
| 6/16/2025 | Joint | Hearing scheduled for 06/24/2025 from 10:30 AM-02:00 PM in Gardner Auditorium |
| 2/5/2026 | House | Accompanied a study order, see H5048 |
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