H 2430
An Act including Krabbe Disease in newborn screening
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Bill overview
This bill proposes to add Krabbe disease, a rare and often fatal genetic disorder, to the list of conditions screened for in newborn babies in Massachusetts. It aims to identify infants affected by Krabbe disease and other lysosomal storage disorders early, allowing for timely treatment and potentially improving outcomes. The legislation seeks to expand the state’s newborn screening program to include these conditions.
Key provisions
- Requires newborn screening for Krabbe disease.
- Includes other lysosomal storage disorders in the screening process.
- Allows for early diagnosis and treatment of affected infants.
- Expands the scope of the Massachusetts newborn screening program.
- Supports proactive healthcare interventions for infants at risk.
Who is affected
- Newborn infants
- Parents of newborn infants
- Healthcare providers
- Public health officials
- Individuals affected by Krabbe disease and lysosomal storage disorders
Notable changes
- Adds Krabbe disease to the existing newborn screening panel.
- Broadens the screening to encompass a group of related disorders (lysosomal storage disorders).
Sponsors
Official sponsors from legislative records.
Primary sponsor
Colleen M. Garry
Cosponsor
Colleen M. Garry
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Bill H.2430 194th (Current)
An Act including Krabbe Disease in newborn screening
By Representative Garry of Dracut, a petition (accompanied by bill, House, No. 2430) of Colleen M. Garry for legislation to require the screening of newborns for Krabbe Disease and other lysomal storage disorders. Public Health.
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Bill Information
Bill Information
Presenter: Colleen M. Garry
Tabs
Bill History Petitioners Committee Vote Committee Summary
Bill History
Displaying 6 actions for Bill H.2430
| Date | Branch | Action |
| 2/27/2025 | House | Referred to the committee on Public Health |
| 2/27/2025 | Senate | Senate concurred |
| 7/3/2025 | Joint | Hearing scheduled for 07/14/2025 from 01:00 PM-05:00 PM in A-1 |
| 7/14/2025 | Joint | Hearing rescheduled to 07/14/2025 from 01:00 PM-06:45 PM in A-1 and Virtual Hearing updated to New End Time |
| 7/14/2025 | Joint | Hearing rescheduled to 07/14/2025 from 01:00 PM-06:05 PM in A-1 and Virtual Hearing updated to New End Time |
| 3/16/2026 | House | Accompanied a study order, see H5234 |
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