H 4554
An Act to improve sickle cell care
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Bill overview
This bill aims to improve sickle cell care in Massachusetts by expanding coverage for fertility preservation services, establishing a statewide steering committee to coordinate care, and creating a registry to track sickle cell disease cases. It also seeks to enhance access to care through Medicaid managed care organizations and accountable care organizations, and to improve education and awareness of the disease.
Key provisions
- Expands coverage for standard fertility preservation services for qualified MassHealth enrollees diagnosed with certain diseases that may cause infertility.
- Establishes a Statewide Steering Committee on Sickle Cell Disease to coordinate care and develop recommendations.
- Creates a statewide registry to track sickle cell disease cases and related information.
- Requires Medicaid managed care organizations to develop and implement a sickle cell disease quality strategy.
- Mandates the reporting of sickle cell disease cases to the state.
- Establishes a program to promote screening and detection of sickle cell disease, particularly among underserved populations.
- Requires training for primary care providers on sickle cell disease management.
- Addresses the transition of care from pediatric to adult services for adolescents with sickle cell disease.
Who is affected
- Individuals with sickle cell disease and their families
- MassHealth recipients
- Healthcare providers
Sponsors
Official sponsors from legislative records.
Primary sponsor
Joint Committee on Financial Services
Cosponsors
Bud L. Williams
David M. Rogers
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Bill H.4554 194th (Current)
An Act to improve sickle cell care
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Bill Information
Bill Information
Sponsor: Joint Committee on Financial Services Status: Referred to House Committee on Ways and Means
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Bill History Cosponsors Committee Vote Fiscal Note Committee Summary
Bill History
Displaying 7 actions for Bill H.4554
| Date | Branch | Action |
| 9/29/2025 | House | Reported from the committee on Financial Services |
| 9/29/2025 | House | New draft of H1346 |
| 9/29/2025 | House | Reported favorably by committee and referred to the committee on Health Care Financing |
| 12/8/2025 | House | Reporting date extended to Wednesday, March 18, 2026 |
| 3/19/2026 | House | Reporting date extended to Monday, June 15, 2026 |
| 4/21/2026 | House | Accompanied by H4555 |
| 4/21/2026 | House | Bill reported favorably by committee and referred to the committee on House Ways and Means |
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