HRES 1195
Supporting the designation of May as "National Myositis Awareness Month".
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Bill overview
This resolution aims to raise awareness about myositis, a group of rare, chronic autoimmune muscle diseases. It proposes designating May as ‘National Myositis Awareness Month’ to highlight the challenges faced by individuals and families affected by these conditions. The resolution emphasizes the need for increased research and improved diagnosis and treatment options for myositis patients. It also encourages public support for those living with myositis.
Key provisions
- Designates May as National Myositis Awareness Month.
- Recognizes the impact of myositis on veterans and citizens.
- Encourages public awareness and education about myositis.
- Highlights the difficulty in diagnosing myositis.
- Calls for increased research into myositis causes and treatments.
Who is affected
- Individuals with myositis
- Families of individuals with myositis
- United States veterans
- United States citizens
Notable changes
- Promotes a dedicated month for raising awareness about a rare disease.
- Specifically mentions the impact on veterans.
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119th CONGRESS — 2d Session
H. RES. 1195
IN THE HOUSE OF REPRESENTATIVES
RESOLUTION
Supporting the designation of May as National Myositis Awareness Month
.
Whereas residents of the United States of America are among those affected by myositis and other rare diseases, with nearly 1 in 10 Americans having rare diseases;
Whereas idiopathic inflammatory myopathies (collectively referred to as myositis) are rare, chronic, autoimmune muscle-wasting diseases that often feature debilitating muscle inflammation and other symptoms, such as pain, fatigue, and trouble swallowing, and can result in myositis-associated interstitial lung disease;
Whereas more research is needed to identify the causes of and modes of treatments for the myositis group of diseases, which includes anti-MDA5 autoantibody-positive myositis, antisynthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis;
Whereas myositis is difficult to diagnose which leads myositis patients to frequently experience delayed treatment and difficulty finding a health care provider with expertise in their condition;
Whereas all who suffer with myositis experience reduced quality of life, particularly since no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis; and
Whereas public awareness and education campaigns on myositis detection and treatment are held during the month of May: Now, therefore, be it
That the House of Representatives—
supports the designation of National Myositis Awareness Month
;
recognizes the importance of raising awareness about myositis and its impact on United States veterans and citizens; and
encourages all people in the United States to become more informed about myositis and to support the individuals and families who are affected by these conditions.