HR 2155
Genetic Information Privacy Act of 2019
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Sign in to take action- Introduced
- Passed House
- Passed Senate
- To President
- Became Law
Bill overview
The Genetic Information Privacy Act of 2019 aims to protect consumers’ genetic information by regulating how genetic testing services handle personal data. It requires companies to obtain explicit consent before sharing a customer’s genetic information with third parties, except for medical research where specific informed consent rules apply. The bill also mandates that testing services notify customers about their rights regarding data disclosure and establishes rules for securing this sensitive information. Finally, it grants the Federal Trade Commission and state attorneys general the power to enforce these regulations.
Sponsors
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Primary sponsor
Bobby L. Rush
Cosponsors
Alcee L. Hastings
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