HR 113 by Jeff Gonzalez
HR 113
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Assembly
- Passed Senate
- To Governor
- Became Law
Overview
This resolution designates June 9, 2026, as FSGS Awareness Day in California. It highlights the significant burden of focal segmental glomerulosclerosis (FSGS), a rare kidney disease, on patients, families, and the state’s healthcare system, including substantial costs and challenges in diagnosis and treatment. The resolution acknowledges ongoing efforts to raise awareness, promote early detection, and develop new therapies for FSGS and other rare kidney diseases.
Key provisions
- Designates June 9, 2026, as FSGS Awareness Day in California.
- Recognizes the significant burden of FSGS on patients and the healthcare system.
- Acknowledges challenges in diagnosing and treating FSGS, including delays and limited access to specialized care.
- Highlights the disproportionate impact of FSGS on minority populations, particularly African Americans.
- Mentions ongoing clinical trials and the PARASOL Project aimed at improving FSGS treatment.
- References the first FDA-approved therapy for FSGS in April 2026.
Who is affected
- Patients with FSGS
- Families of patients with FSGS
- California residents
- Healthcare providers in California
- African American communities
Notable changes
- Designates a specific awareness day to increase public knowledge about FSGS.
Bill text
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Sponsors
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