HR 6288
Data for Pediatric Brain Cancer Act of 2023
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- Passed House
- Passed Senate
- To President
- Became Law
Bill overview
This bill, the Data for Pediatric Brain Cancer Act of 2023, aims to improve the development of treatments for pediatric brain tumors by establishing a real-world data registry program. The program will collect and analyze data on how children with atypical teratoid rhabdoid tumor (ATRT) are treated in routine clinical practice, which can be used as a comparison to determine the effectiveness of new treatments. This will help researchers design clinical trials more effectively, particularly for rare diseases where traditional clinical trials are difficult to conduct.
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Primary sponsor
Cosponsors
Susan Wild
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