HRES 419
Expressing support for the designation of May as Ehlers-Danlos Syndrome Awareness Month to increase the knowledge of this little-known, potentially fatal, genetic disease.
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Bill overview
This resolution aims to raise awareness about Ehlers-Danlos Syndrome (EDS), a group of inherited disorders affecting connective tissue, which can cause joint instability, fragile skin, and other serious health issues. It proposes designating May as EDS Awareness Month to increase public knowledge of the disease, its various types, and the challenges faced by those living with it. The resolution also encourages research into potential treatments and a cure for EDS, as there is currently no known cure or effective treatment.
Sponsors
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Primary sponsor
C. A. Dutch Ruppersberger
Cosponsor
Eleanor Holmes [D-DC-At Large] Norton
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