Frontotemporal Degeneration Awareness Week.
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Progress
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- Introduced
- Passed Senate
- Passed Assembly
- To Governor
- Became Law
Overview
This resolution declares the week of September 28 to October 4, 2026, as Frontotemporal Degeneration (FTD) Awareness Week in California. The resolution highlights the seriousness of FTD, a terminal neurodegenerative disease affecting speech, behavior, and personality, and emphasizes the need for increased awareness and research. It also references existing state and national plans addressing Alzheimer’s disease and related dementias, as well as recommendations for genetic counseling and testing for individuals diagnosed with FTD.
Key provisions
- Declares the week of September 28-October 4, 2026, as Frontotemporal Degeneration Awareness Week.
- Recognizes Frontotemporal Degeneration (FTD) as a significant public health concern.
- References the Association for Frontotemporal Degeneration (AFTD) as a leading organization focused on FTD.
- Notes the long diagnostic delay (approximately 3.6 years) and limited life expectancy (7-13 years) associated with FTD.
- Highlights the high annual care costs associated with FTD, approximately double those of Alzheimer’s disease.
- Mentions the inclusion of FTD in the National Plan to Address Alzheimer’s Disease.
- Recommends genetic counseling and testing for individuals diagnosed with FTD.
- Acknowledges the varied symptoms of FTD, including language and movement variants.
Who is affected
- Individuals with Frontotemporal Degeneration (FTD)
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1 on record
Primary sponsor
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