HR 568
A Resolution designating June 23, 2026, as "Dravet Syndrome Awareness Day" in Pennsylvania.
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- Passed House
- Passed Senate
- To Governor
- Became Law
Bill overview
This resolution designates June 23, 2026, as "Dravet Syndrome Awareness Day" in Pennsylvania. It recognizes Dravet syndrome as a rare genetic form of epilepsy characterized by temperature-sensitive seizures and often associated with developmental delays and disabilities. The resolution highlights the challenges faced by individuals with Dravet syndrome, including diagnostic difficulties and a significant mortality rate, and acknowledges the work of the Epilepsy Neurogenetics Initiative at Children’s Hospital of Philadelphia. It also honors the Dravet Syndrome Foundation and those impacted by the condition.
Key provisions
- Designates June 23, 2026, as Dravet Syndrome Awareness Day in Pennsylvania.
- Recognizes Dravet syndrome as a genetic form of epilepsy.
- Acknowledges the challenges associated with diagnosis and treatment.
- Highlights the mortality rate associated with Dravet syndrome.
- Recognizes the Epilepsy Neurogenetics Initiative at Children’s Hospital of Philadelphia as a Dravet Comprehensive Care Center.
- Honors the Dravet Syndrome Foundation.
- References the annual remembrance day on June 15th.
Who is affected
- Individuals with Dravet syndrome and their families
- Healthcare professionals involved in treating Dravet syndrome
- Researchers studying Dravet syndrome
- The Epilepsy community in Pennsylvania
- The Dravet Syndrome Foundation
Notable changes
- Establishes a specific day for raising awareness about Dravet syndrome within Pennsylvania.
Sponsors
Official sponsors from legislative records.
Primary sponsor
Cosponsors
Benjamin Sanchez
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