HR 528
A Resolution directing the Joint State Government Commission to conduct a study on pediatric acute-onset neuropsychiatric syndrome and pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections.
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Sign in to take action- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Bill overview
This resolution directs the Pennsylvania Joint State Government Commission to conduct a study on pediatric acute-onset neuropsychiatric syndrome (PANS) and pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS). The study will examine issues such as insurance coverage, available resources, provider capacity, common misdiagnoses, and policy approaches in other states. The goal is to identify recommendations for improving diagnosis, treatment access, and support for affected patients and families in Pennsylvania.
Key provisions
- Assess current insurance coverage for PANS and PANDAS treatments.
- Evaluate existing Commonwealth resources related to PANS and PANDAS.
- Determine the number of healthcare providers specializing in PANS and PANDAS.
- Identify common misdiagnoses and their impact on patient outcomes.
- Analyze policy actions taken by other states regarding PANS and PANDAS.
- Develop recommendations for legislative and policy changes in Pennsylvania.
- Consult with PARDAC, medical organizations, patient advocacy groups, and health insurers during the study.
- Submit a report of findings and recommendations to the House of Representatives within 18 months.
Who is affected
- Children and adolescents with PANS or PANDAS
- Families of children and adolescents with PANS or PANDAS
- Healthcare providers (pediatricians, neurologists, immunologists, psychiatrists)
- Health insurers
- Rare disease advocacy groups
Sponsors
Official sponsors from legislative records.
Primary sponsor
Cosponsors
James Struzzi
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