SR 286
A Resolution designating the month of May 2026 as "Ehlers-Danlos Syndrome Awareness Month" in Pennsylvania.
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Sign in to take action- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Bill overview
This resolution designates May 2026 as "Ehlers-Danlos Syndrome Awareness Month" in Pennsylvania. The resolution highlights the nature of Ehlers-Danlos syndrome (EDS) as a group of genetic disorders affecting connective tissues, acknowledging the challenges associated with diagnosis and management due to varying symptoms and potential misdiagnosis. It emphasizes the importance of increased awareness and advocacy for this condition.
Key provisions
- Designates May 2026 as Ehlers-Danlos Syndrome Awareness Month in Pennsylvania.
- Recognizes Ehlers-Danlos syndrome as a group of genetic disorders affecting connective tissues.
- Acknowledges the challenges of diagnosis due to varied symptoms and potential misdiagnosis.
- Highlights the need for knowledgeable and compassionate care for individuals with EDS.
- Emphasizes the importance of awareness and advocacy for improved diagnosis, treatment, and research.
Who is affected
- Individuals with Ehlers-Danlos Syndrome
- Families affected by Ehlers-Danlos Syndrome
- Healthcare professionals
- Patients with undiagnosed conditions resembling EDS
Notable changes
- None explicitly stated in the text.
- The resolution aims to increase public awareness of a relatively rare condition.
Sponsors
Official sponsors from legislative records.
Primary sponsor
Cosponsors
Christine Tartaglione
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