A Resolution recognizing May 17, 2026, as "World Neurofibromatosis Awareness Day" in Pennsylvania.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed House
- Passed Senate
- To Governor
- Became Law
Overview
This resolution aims to recognize May 17, 2026, as "World Neurofibromatosis Awareness Day" in Pennsylvania. The resolution highlights the importance of raising public awareness about neurofibromatosis, a rare genetic condition that affects various parts of the body and can lead to significant health challenges. It acknowledges the work of organizations like the Children’s Tumor Foundation in supporting research and patient care, and the ongoing need for increased awareness and treatment options.
Key provisions
- Designates May 17, 2026, as "World Neurofibromatosis Awareness Day" in Pennsylvania.
- Recognizes the significance of raising public awareness about neurofibromatosis.
- Acknowledges the impact of neurofibromatosis on individuals and families.
- Highlights the need for continued research and support for patients.
- Mentions the three types of neurofibromatosis: NF1, NF2, and Schwannomatosis.
Who is affected
- Individuals with neurofibromatosis and their families
- Healthcare professionals
- Researchers
- The general public
Notable changes
- The resolution emphasizes the need for increased public awareness regarding neurofibromatosis.
- It acknowledges recent FDA approval of medications for treating NF1 and plexiform neurofibromas.
- It recognizes the role of the Children's Tumor Foundation in research and patient support.
Bill text
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Document of record
- Version
- Pn 3126 Html
- Published
- Not published in the source record
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Sponsors
Official sponsors from legislative records.
9 on record
Primary sponsor
Steven Malagari
Cosponsors
Benjamin Sanchez
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