A Resolution recognizing June 23, 2026, as "Dravet Syndrome Awareness Day" in Pennsylvania.
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Progress
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- Introduced
- Passed Senate
- Passed House
- To Governor
- Became Law
Overview
This resolution recognizes June 23, 2026, as "Dravet Syndrome Awareness Day" in Pennsylvania. It aims to raise awareness about Dravet syndrome, a rare and severe form of epilepsy, and its associated challenges for individuals, families, and caregivers. The resolution encourages support for ongoing research and efforts to improve treatment and outcomes for those affected by this disorder.
Key provisions
- Recognizes June 23, 2026, as Dravet Syndrome Awareness Day.
- Defines Dravet syndrome as a rare and severe form of epilepsy.
- Highlights the challenges faced by individuals with Dravet syndrome and their families.
- Encourages increased awareness and understanding of the disorder.
- Promotes support for research, caregivers, and advocates.
- Acknowledges the international recognition of Dravet Syndrome Awareness Day.
Who is affected
- Individuals with Dravet syndrome and their families
- Caregivers of individuals with Dravet syndrome
- Researchers studying Dravet syndrome
- Pennsylvania residents
Notable changes
- None – this is a resolution recognizing an existing awareness day.
Bill text
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Document of record
- Version
- Pn 1877 Html
- Published
- Not published in the source record
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Sponsors
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9 on record
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