HB 5581
Relating to newborn screening (Dawson’s Law)
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- Passed House of Delegates
- Passed Senate
- To Governor
- Became Law
Bill overview
This bill, known as Dawson’s Law, expands West Virginia’s newborn screening program to include additional tests for a wider range of genetic disorders. Specifically, it adds infantile GM1 gangliosidosis to the list of conditions screened for, along with several other metabolic and genetic diseases. The bill also ensures that positive test results are reported promptly and that affected infants receive necessary medical and support services.
Key provisions
- Expands newborn screening to include infantile GM1 gangliosidosis.
- Adds congenital adrenal hyperplasia, cystic fibrosis, biotinidase deficiency, isovaleric acidemia, glutaric acidemia type I, 3-Hydroxy-3-methylglutaric aciduria, multiple carboxylase deficiency, methylmalonic acidemia-mutase deficiency form, 3-methylcrotonyl-CoA carboxylase deficiency, methylmalonic acidemia, Cbl A and Cbl B forms, propionic acidemia, beta-ketothiolase deficiency, medium-chain acyl-CoA dehydrogenase deficiency, very long-chain acyl-CoA dehydrogenase deficiency, long-chain hydroxyacyl-CoA dehydrogenase deficiency, trifunctional protein deficiency, carnitine uptake defeat, maple syrup urine disease, homocystinuria, citrullinemia type I, argininosuccinate acidemia, tyrosinemia type I, hemoglobin S/Beta-thalassemia, sickle C disease, and hearing deficiency to the screening list.
- Requires positive test results to be reported to the Bureau for Public Health.
- Designates birthing facilities as covered benefits for newborn screening under state insurance programs.
- Establishes a process for providing medical, dietary, and related assistance to affected infants.
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