SB 463
Requiring Bureau for Public Health to test for mucopolysaccharidosis type 1
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- Passed Senate
- Passed House of Delegates
- To Governor
- Became Law
Bill overview
This bill requires the West Virginia Bureau for Public Health to test newborns for a range of metabolic disorders, including mucopolysaccharidosis type 1 (MPS1). The bill expands newborn screening to include MPS1 and other conditions, and mandates reporting of positive results to the Bureau for Public Health. It also establishes reimbursement for screening services by state insurance programs and outlines provisions for providing medical and related assistance to affected children.
Key provisions
- Requires the Bureau for Public Health to test newborns for mucopolysaccharidosis type 1 (MPS1).
- Expands newborn screening to include several other metabolic disorders.
- Mandates reporting of positive test results to the Bureau for Public Health.
- Establishes reimbursement for newborn screening services by state insurance programs.
- Requires the Bureau for Public Health to propose rules for implementation.
- Outlines provisions for medical, dietary, and related assistance for affected children.
- Specifies a timeline for the Bureau for Public Health to implement the expanded screening requirements.
Who is affected
- Newborn infants
- Parents and legal guardians of newborns
- Healthcare providers involved in newborn care
- The Bureau for Public Health
- Children diagnosed with metabolic disorders
Notable changes
- Adds mucopolysaccharidosis type 1 (MPS1) to the list of diseases requiring newborn screening.
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