Establishes "Tom's Friends with ALS Bill of Rights" Act.
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed General Assembly
- Passed Senate
- To Governor
- Became Law
Overview
This bill, officially known as the ‘Tom’s Friends with ALS Bill of Rights’ Act, aims to improve the quality of life for individuals living with Amyotrophic Lateral Sclerosis (ALS). It establishes specific rights and protections for these individuals, focusing on access to healthcare, transportation, and communication services. The legislation seeks to ensure that people with ALS receive equitable and comprehensive support throughout their illness and care journey. It also provides for the establishment of a statewide registry of ALS patients.
Key provisions
- Creates a statewide registry of individuals diagnosed with ALS.
- Guarantees access to specialized ALS healthcare services.
- Ensures access to transportation assistance for medical appointments and other needs.
- Protects the right to communicate effectively, including access to assistive technology.
- Requires insurance coverage for medically necessary ALS treatments and equipment.
- Establishes a process for addressing complaints related to ALS care.
- Promotes research into ALS and potential treatments.
Who is affected
- Individuals with ALS
- Families of individuals with ALS
- Healthcare providers
- Insurance companies
- State government agencies
Notable changes
- Requires insurance companies to cover specific ALS treatments.
Bill text
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Sponsors
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1 on record
Primary sponsor
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