Sickle Cell Disease Comprehensive Care Act
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed House
- Passed Senate
- To President
- Became Law
Overview
This bill amends the Social Security Act to allow state Medicaid programs to establish health homes specifically designed to provide coordinated care for individuals diagnosed with sickle cell disease. Starting January 1, 2026, states can create ‘sickle cell disease-focused’ health homes, ensuring they include dental and vision services. The Centers for Medicare & Medicaid Services will develop best practices for these health homes, and states must report on the quality of care, access, and expenditures for individuals receiving these services.
Key provisions
- Allows state Medicaid programs to establish health homes for individuals with sickle cell disease.
- Establishes ‘sickle cell disease-focused’ health homes starting January 1, 2026.
- Requires health homes to provide dental and vision services to individuals with sickle cell disease.
- The Centers for Medicare & Medicaid Services will develop best practices for these health homes.
- States must submit reports on the quality, access, and expenditures related to sickle cell disease health home services.
- Defines ‘eligible individual with sickle cell disease’ based on Medicaid eligibility and a confirmed sickle cell disease diagnosis.
- Defines ‘sickle cell disease’ as an inherited blood disorder identified through newborn screening or genetic testing.
- Provides a special rule for states to receive approval for a sickle cell disease-focused State plan amendment.
Who is affected
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