DeOndra Dixon INCLUDE Project Act of 2026
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Progress
Where this bill stands in the legislative process.
- Introduced
- Passed Senate
- Passed House
- To President
- Became Law
Overview
This bill, the DeOndra Dixon INCLUDE Project Act of 2025, authorizes the Department of Health and Human Services to establish a research program focused on Down syndrome. The program will conduct research, training, and investigations into the unique health challenges and conditions associated with the condition, aiming to improve health outcomes and quality of life for individuals with Down syndrome and their families. It seeks to identify biomarkers, understand co-occurring diseases, and promote inclusive clinical trials.
Key provisions
- Establishes the INCLUDE Project, a research program focused on Down syndrome.
- Requires the National Institutes of Health (NIH) to coordinate Down syndrome research activities.
- Funds research into the biological mechanisms of Down syndrome and co-occurring conditions.
- Supports the development of clinical trials specifically for individuals with Down syndrome.
- Prioritizes Down syndrome research that doesn't duplicate existing NIH research.
- Mandates biennial reports to Congress detailing research conducted under the program.
- Includes research on biomarkers for diagnosis and treatment.
- Focuses on improving the quality of life for individuals with Down syndrome and their families.
Who is affected
- Individuals with Down syndrome
- Families of individuals with Down syndrome
- Researchers
- National Institutes of Health (NIH)
Bill text
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